Friday, July 23, 2010

6 weeks Post SDR

Well here we are! 6 week Post SDR surgery, and I couldn't be happier. James is really progressing so well, and I am really excited to see what the next few weeks and months will hold for him.

James has worked so hard to build his strength back up. We have hit a few road-blocks with sickness and just plain ole stubborn-ness but overall we is has been a smooth road. I have tried to find some intensive camp-like therapy but there isnt anything even close to our area. The only option that we have is in Birmingham and you have to be 6 months post op to go. So we are still looking into that but for right now we are sticking with our course of therapy.

6 weeks post op James can now crawl for up to 15-20 feet on his hands and knees, He can sit criss-cross ( Taylor sit) and he can even get in to side sit all by himself. As you saw in the videos, he is taking steps under his own weight and they are actually getting him places. We are still working on moving those steps into his walker.

Other little things that we didnt really expect are exciting too. James is talking much clearer and in long sentences. I have been able to understand him but now others can too! His hand movement is much better too. He can grip things tighter and pick up smaller objects. Another cool thing is that he seems to be switching from left handed to right handed. Which we always thought it was right handed because he has always stabilized himself with his right. So I guess we will see which hand he uses as we go along. As long as he can use one with quality, I don't care which hand it is.

This 6 weeks has gone by so very fast, and I am sure there are so many little things I am forgetting but I spend my days with my chin on the floor that it is hard to stop and make myself remember each little detail. That is why I try to have my cell phone with me so that I can video all the little things. In a way I feel like I am reliving his first year because I am getting to see all those milestones that I "missed" out on. I use quotes because I dont think I really missed out on them but instead God has allowed me an even sweet prize. I get to be so head over heels in love with my son and have more life under our belt. That just makes seeing these milestones even more exciting. It is also great to see the joy on James' face and how proud he is of himself.

Speaking of that sweet face of James. I have some new pictures to share of James. One of my photographer friends took James pictures and I LOVE them!! Kelly Clark Baugher Photography ! She is so talented and did a great job at capturing my son's spirit. I am happy to call her not only a peer but a friend. Thank you Kelly!!

Tuesday, July 20, 2010

Days like Today make it worth it!!

Every once in awhile I will get asked if all the therapy and stress we go through is worth it, and why dont we just let James use a wheelchair and move on. Well all I have to say to those people, well meaning you might be.............Watch this and tell me that James will never walk!!!!!

Tuesday, July 6, 2010

Sometimes it just sneaks in

When your child is born you are full of hopes and dreams for that little 1 min old child. You make plans, and then some doctor takes all those dreams away. Or that is what is feels like anyway. I want to be that family that has is altogether and moves on with life. I try my best to be that. And 90% of the time I would say that I never even think about those two words that have changed my life forever. Most days we just live our lives.

Yes, some of our dreams for our children and our family have changed but 90% of the time we just live life and move on with our new dreams. The funny thing is, they aren't plan B dreams. They are just new dreams that I never knew, I always wanted. My life is happy, my child is happy... I am happy. But there is that 10% of the time, where those 2 words sneak in....Cerebral Palsy. In those short seconds of time, you are brought back to when the rug was pulled out from under your world. In those brief moments, you wonder " what would our life look like right now if..."

Well this weekend I had one of those 10% days. We had the BEST time at my parents campsite on the 4th of July. All of our family was there, the weather was perfect and it was so much fun. We grilled, swam and made s'mores. It was the perfect 4th of July festivities. Except for those 2 words that sometimes float over me and attack. I was having such a great time with my family, and those 2 ugly words came to my mind while I was watching my nephews fly down the hill on their razor scooters. They were laughing and having a great time and my mind jumped to the
"If James didn't have Cerebral Palsy he would be doing that right with them" It is just a moment, a blink, but in that blink my heart falls 10 stories to the pavement below. I find myself watching typically developing children and wondering what James would look like doing those activities. I see a glimpse of the "What if world" and I want to fall apart. That is not an option for me because it is only a blink. By the next breath I have to bring myself back and move on because James needs me. James needs me to dream BIG and be his advocate, and expect success from him.

Then I come back to the 90% of my life. And this Life is wonderful. I have a son that I love more that the air I breathe. He is so happy and fills my life with such joy. The dreams I have for him are SO BIG!! And I do expect GREAT things from this little guy. He has proven to many wrong over his little life, and even though I got his "evaluation" today that belongs in that 10% of my life. I am going to keep if right there and not let it creep into my 90%. I don't agree with many things on that form. I know my son will do great things in his life.

I am SO happy that God has allowed me the opportunity to raise James and be witness to miracles here on earth. So even though there is a 10% that sometimes follows me and tries to steal my joy........ I choose to live my life in the 90% today and be happy that I have a sweet beautiful son that is doing so well and is such a joy!