Day 2 or PT and coming home

James is still having difficulty with being put in the sitting position, but it is getting better. We think he is having some nerve pain in his feet that we were told might happen. His little nervous system is trying to workout what has happened to it and it should calm down in the coming weeks. We had an amazing therapist that was so energetic and James really liked. Well all of the therapist were amazing but Micheal was something extra!

We worked on sit to stand activities and some walking as well. I was amazed that just 4 days post op James was holding his own weight on his feet. The scissoring ans cris crossing that he was doing pre-op was gone! I know I went through these sessions with my mouth wide open in amazement at what I was witnessing. I had read about what to expect and I had seen other videos but when you see your child move muscles that he has never been able to use in his 2.5 years here on this earth. It is very surreal to be apart of this journey.

Dr. Park came down to the therapy gym to see James . He was very happy at his progress, and he said that everything James was experiencing nerve pain wise was very typical and will go away.
And now the Trip Home! Post-op Day 5 and it is time to go home. James slept really well. We went to our finally PT session. This session was a lot of making sure we understood the stretches and if we had any questions. The therapist did a few things with James. He crawled and practiced his walking and did a little sitting. Then we went over a lot of the precautions about how to hold and carry him. These precautions are a little intimidating let me tell you!

After our PT session we packed up, got his prescriptions and off we went. The first hour of our journey was rough. James' meds had not kicked in and he was really uncomfortable in his car seat. I just started praying that he would be ok. It is so stressful when you know your child is in pain and there is nothing you can do about it. But after a very loud , stressful first hour James calmed down and was able to relax. He feel asleep after a little while. So did I! I fell asleep in Il and woke up 77 miles outside of TN!!! Josh had been flying!! He said that all he wanted to do was get his family HOME. We made the 8 hour trip in 6.5 hours. We only stopped once to use the restroom and grab a bite to eat.

I love the sites of MO, IL and KY but boy, oh boy did it feel good to cross that Alabama state line. We pulled into our driveway at 6:27pm and were greeted by our sweet Lab sushi and even the chickens seemed happy to see us :-)

My sister was here and she has cleaned our house and set up James' big boy bed. So here we are, starting the recovery journey. So far it is going well. James is having muscle spasms and having a hard time stay comfortable. He wants to play but just doesn't have the energy. I know ut is going to take some time to get back in the swing of things but we will get there. Tomorrow is our first day of home PT and I am looking forward to our pt seeing how many changes in James' boy there are!